January 21st 2026 | 8AM - 8PM
The program will include thematic panels and forums covering major topics such as scientific research and innovation, advances in clinical management, and the experiences of the EB community.
Open Forums
Accessible to all participants of the conference. The audience will be encouraged to take part in a lively discussion.
Professional Forums
Educational lessons intended for health care providers working with and/or supporting patients and families in the respective field.
DEBRA International Specific
The devastating impact of EB : UK community Insights and the plan for a new global Insight study
Youth Council Forum
Professionals FORUM: Wound care and Nursing in EB
Kalsoom Begum and Catalina Hubner
Coffee Break
2nd Session EB skin, mucosae and its challenges
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Rahul Mahajan
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Renata Rodrigues
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Anna Bruckner
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Giampiero Soccorso
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Susanne Kramer
DEBRA International Specific
EB Without Borders, how to go further together
Conference Lunch
3rd Session Basic Science for the Understanding of EB
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Alexander Nystrom
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Priscila Matsumoto
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Angelo Condorelli
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Robert Hynds
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Peter Marinkovich
DEBRA International Specific
Pharma Perspective
Coffee Break
4th Session Preclinical studies Part 1
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Francis Palisson
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Yanling Liao
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Mei Chen
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Tero Järvinen
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Margarita Calvo
Professionals FORUM: Palliative and end-of-life care in EB
Mark Popenhagen and Nic Schräder
Poster Viewing Session Day 1: Networking, Drinks and Fingerfood