January 20st 2026 | 8AM - 8PM
The program will include thematic panels and forums covering major topics such as scientific research and innovation, advances in clinical management, and the experiences of the EB community.
Open Forums
Accessible to all participants of the conference. The audience will be encouraged to take part in a lively discussion.
Professional Forums
Educational lessons intended for health care providers working with and/or supporting patients and families in the respective field.
start: 7:30
end: 8:00
Welcome reception and Registration
start: 8:30
end: 10:10
Location: Theater
1st Session Genetics and Diagnostics
Diagnostic challenges of rare forms of EB
Importance of genetic diagnosis for disease management
The diagnostic journey in epidermolysis bullosa: the Dutch experience
TEM and IEM in diagnosis and therapy responses of DEB
Atypical and rare variants of epidermolysis bullosa simplex: clinical and genetic insights
Oral Abstract: Immunofluorescence Mapping vs. Electron Microscopy in Epidermolysis Bullosa Comparative Retrospective Study in 84 Genetically Confirmed Patients in Australia
Nicole Tomas
Oral Abstract: Genotype-Phenotype Correlations in Recessive Dystrophic Epidermolysis Bullosa
Kun Zhan
Discussion
all speakers
start: 8:30
end: 10:10
Location: Curitiba Room
Debra International: Ibero-American Network
This session, “The Ibero-American Network,” will present the organic development of a virtual support network that connects DEBRA organizations, medical specialists, caregivers, and people living with EB across Ibero-America.
Florencia Fernandez
Evanina Marcillow
start: 10:10
end: 10:20
Location: Theater
Diamond sponsor
start: 10:20
end: 10:40
Coffee Break
start: 10:40
end: 13:10
Location: Theater
DEBRA International: International EB Community Advisory Board (EB CAP)
Rainer Riedl
start: 10:40
end: 13:10
Location: Curitiba Room
start: 13:10
end: 14:25
Conference Lunch: Sponsored by
start: 14:25
end: 15:25
Location: Main RoomTheater
DEBRA International: Priority Settings Networking Session & JLA overview
Research priorities based on key unanswered EB questions shared by the global EB community for EB Simplex (EBS), Dystrophic EB (DEB), Junctional EB (JEB) and Kindler (KEB). What’s next?
Irene Corrales
start: 15:25
end: 18:25
Location: Theater
start: 15:25
end: 18:25
Location: Curitiba Room
start: 16:30
end: 16:50
Coffee Break - between foruns
start: 19:30
end: 22:30
Dinner