January 20st 2026 | 8AM - 8PM
The program will include thematic panels and forums covering major topics such as scientific research and innovation, advances in clinical management, and the experiences of the EB community.
Open Forums
Accessible to all participants of the conference. The audience will be encouraged to take part in a lively discussion.
Professional Forums
Educational lessons intended for health care providers working with and/or supporting patients and families in the respective field.
Opening and Welcome reception
1st Session Genetics and Diagnostics
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Christina Has
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Ghada El-Kamah
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Liat Samuelov
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Doug Keene
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Peter Van den Akker
Coffee Break
Professionals FORUM: Nutrition in EB
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Ana Paula Caio Zidorio
Open FORUM: Active health promotion in EB
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Jennifer Chan
Conference Lunch
DEBRA International Specific
Empowering Voices Forum:
Who cares? Balance care decisions within family and professional clinicians. lived experience perspectives
Global EB Priority settingpartnership:
The research priorities
for the 4 main types of EB
Debra International PrioritySenttings
Networking Session
Coffee Break
Professionals FORUM: Psychological support in EB
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Jodie Fellows and Michelle Lahat
Dinner