1993 – Born Matija, son with RDEB.
1996- Founder and President of DEBRA Croatia. Member of EBWB, supporting DEBRA organisations in SEE countries.
2009-2025 – Member of EC DEBRA International.
2010-2022 - Founder and President of RD Croatia.
2012-2024 - Member of BoD Rare Diseases Europe
2019-2022 - Member of BoD Global Skin
2023 – UN High Level Meeting on Rare Diseases Resolution- DEBRA Croatia was presented as good practice of support for PLWRD.
2025- Patient Representative ERN Skin"